An answer for now!

Ok-- so I went to the neurologist today and.................... I have what is called a "pseudotumor" Basically that means I don't have a brain tumor-- but I have too much spinal fluid in my brain which then causes pressure and back ups that in turn cause symptoms mimicking a tumor.

Good news- NO TUMOR!
Next Tuesday they are doing a spinal tap to remove the excess spinal fluid.
Hopefully after that my headache will be gone!

Bad news-
Since we don't know what causes it - it is likely to back up again.
From what we read there are only 12,000 people in the United states with this ranging in age and weight-- but most common among women of child baring age who are over weight. In all the instances of it - there is never a comon cause that is known and therefor not preventable but can be treated. (possible brain stints and or medications.- this being worst case).

The craziest part is that of that few number in all of the US-- my neighbor that lived across the streat from me growing up (and has like every other problem I have had)-- has had this same thing (2x). So I have been talking to her and finding out what she has done to finally get it under control.

Keep praying!! I feel like this is an answer to prayer in so many ways! However, I am struggling with some pretty intense depression which is going to be hard for me to intigrate back into work since my boss (patience, forgivness and love- just reminding myself) thinks once the fluid is gone I will be back to normal.

I go in on Friday for 2 (of 4) additional tests. One is an EEG and one is BSEP-- something to do with stimulating the brainstem and seeing if it's doing it's thing!

I will keep you all posted. Thanks for praying!

ck

an unsure update

Well-- we got the MRI results.....

I have an abnormlly large space in my occipital loeb.... (The vertic is still out as to what that means--- some say it's where my boss sucked the life out of me... some say it's where Jesus lives but he doesn't show up on MRI's- I say I knew I had a whole in my head!! ) Anyway- I am trying to make light of the fact that I seem to have an abnomality in my brain. All I can find when i type the name of this thing in is info about MS. UGH! I hope that God carries that idea right past me!

The other thing they found that seems to be in question is evidence I had a minor stroke.... it's in question I guess cause of my age-- so I don't know what that means-- i say if it's there it means something.

Anyway-- today I am feeling......................... I don't know- relief that I have some answers and they supposivly aren't life thretening (sp)- My reg Dr. called and made me an apointment at the Nerologist for next wednesday- that was the first they could get me in-- I am on an cancelation list (so someone cancel- my head hurts).

They are also weaning me off one of my meds-- which means I will be an emotional wreck! But they think it might make the headache go away! They drew more blood-- and the bills have started rolling in--- I can't imagine if I didn't have insurance (we have already put almost 600 into this! )

Our 1 year aniversary is next Sunday! :) YEAY!! It has really been the best year in so many ways - health wise it's sucked!! But now due to my health we aren't going back to our honeymoon spot (chicago) which we wanted to do every year on our anniversary-- and I messed it up! We don't want to take the risk.

Soooo- all that being said--- please pray for both of us! Ryan is terrified that I am going to die. I am not so much thinking I am going to die- as much as I am feeling hopefull that the neologist will find something with an answer that's fixable! Just pray for help, healing, and peace. Never in a million years would I have thought I would go through this at 29. God has his own plan sometime!

ck

sorry forgot the LO's

Ignoring the world & just feeling blessed!

Hey everyone.

health update-- there is none-- MRI is now supposed to happen on Monday at 9am. Geez! Still have a headache and heart is still palpotating.

Life update-- Well i was having a good day til my boss called and well-- told me I should be at work at least an hour a day - to push myself!!!!! what the *$%@ does he not get that i have the worlds worst headache and I am not just vacationing in my living room (although I am enjoying not having to deal with him). Anyway- he told me it's not healthy for me to sit at home and think about it so I should drive (lightheaded and not clearly thinking) an hour a day so I can sit at my desk for an hour. I have not many christian things to say about this man right now!!


But on a much brighter note-- I have been very blessed to be surrounded by some amazing friends. You have seen pics of my family and my hubby is by far my best friend and my biggest cheerleader right now. But I wanted to take a sec and tell you about 2 friends who mean the world to me. Maria and Erin. They pray, they laugh, they call, they talk, the encourage, they speak words of truth and honesty. I love them and these are 2 layouts I did to show just that!

Hope to be on the right track to knowing

Been to my regular Dr. today-- she beleives it something with my brain. (no surprise to me - LOL) but she is very concerned and has me scheduled for an MRI tommorrow. Hope this shows something. Some answer would be nice-- even if it is we think it's this------ we we are going to try this! But instead I got NOTHIN!

Maria & Erin- I will hopefully talk to you soon- I have just been so tired- so I haven't been awake many hours of any day.

Here is to knowing something!! :)

Ck

Why can't things be normal!?

ok--- It's been a crazy busy few days-- in and out of ER with heart and head stuff (yes we were back today to a differnt ER- one that actually hooked me up to a heart monitor). I am now all wired up and being monotered from home. And in case having your heart messed up and feeling light headed and woozy isn't bad enough-- today my body decided it would enjoy vomiting too. In case my body is reading this - BE DONE-- BE NORMAL!!

Anyway. I am praying that this time they find something- cause even if nothing shows up - it's still happening and something is really not right. Pray for wisdom for those Dr.'s

Erin- Genevive's baby was due on wednesday-- still no baby - she was at church on sunday and they are hoping it comes this week- she said the Dr. told her she would probably be a week behind.

So here is to a new week-- hopefully a healthier one.

when it rains it pours--- I'm counting my blessing though

What a week... Lynde, Ry & I are still workin on the bussiness stuff... Have some meetings this week with some people

But on the more insense note-- I am recovering and learning that sometimes Dr's are like weather men-- they don't have to have the answers and don't neccessirly care if they do. Ryan rushed home from work Thursday to take me to ER cause I was having heart issues... a crazy day of having heart palpitations-- from flip flops to hard pounding - both which lead to a presure in my head that makes me feel woozy and like I am drunk (but not in ANY way a good thing). ER ran some tests basically told me I wasn't goin to die and we went home- (after 6 hrs). Then Friday I spent the day searching for a cardioligist who would do followup tests that the DR at ER had ordered.... got the tests-- still no answers. I had some more episodes yesterday - not as frequent as Thursday- and again some today- but not as much. I just want answers about everything that is soooooo screwed up in my body. Is that too much to ask.

Needless to say- I am glad I am not dead-& that I don't have some cancer or heart attack. Stay tuned for details. And please pray that I have answers.

Geez- it's been a while since I have posted. I have been crazy busy at work and Ryan and I have been feverishly putting together a web site for C3 studios (custom Creative crafts). I've been praying lots about the direction in my life - and among other thingsI am relling led to use my gifts to help others appreciate and embrace life in this busy world (as I am so frequently challenged to do myself). Among some other major changes I am going to be scrapping for others (for a $$).

God has already been good to me. Ryan has a co-worker who wants me to scrap all 3 of her kids, my sister in law has a friend who I'm going to do her baby announcments, and a friend of mine is due with her first baby on wednesday and wants me to take pics and maybe do an album too. God Rocks-- I don't know why I sometimes wonder where he is!

I will type more later-- remember this week to look up- see the beauty of the day and thank God for the unexpected blessings!